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Huntington's Disease Society of America (HSDA), with its headquarters in New York City, currently has 54 volunteer-led Chapters and Affiliates across the United States. Chapters and Affiliates support HDSA's mission by bringing community-based services, awareness and grassroots fundraising to strengthen resources to families affected by HD.
Huntington's Disease Society of America (HSDA), with its headquarters in New York City, currently has 54 volunteer-led Chapters and Affiliates across the United States. Chapters and Affiliates support HDSA's mission by bringing community-based services, awareness and grassroots fundraising to strengthen resources to families affected by HD.
Categories
Disease/Disability Information
Huntington's Disease
Health/Disability Related Support Groups
Case/Care Management
Disability Awareness Training
Host's support group meetings for families who are affected by Huntington's Disease. This group reviews caregiver support, discusses genetic testing, care options, and serves as a general sounding board to support one another through the journey of this disease. Support groups are offered face-to-face and on-line. Visit website to find a group.
Host's support group meetings for families who are affected by Huntington's Disease. This group reviews caregiver support, discusses genetic testing, care options, and serves as a general sounding board to support one another through the journey of this disease. Support groups are offered face-to-face and on-line. Visit website to find a group.
Categories
Internet Support Groups
Huntington's Disease
Health/Disability Related Support Groups
Provides Huntington's Disease education and advocacy services. Hosts education days to increase public awareness. Guest speakers discuss different topics about Huntington's Disease such as discoveries about the disease, new and promising research, discoveries about the progression of the disease, and resource available to families and patients.
Local chapter supports are available online through the chapter website and social media channels. By keeping a constant stream of information online, patients and families can find support and information at all hours of the day or night.
Members providing advocacy services through work with the medical community including medical students, social workers, and police to create an understanding environment for those who are suffering from Huntington's Disease.
Provides Huntington's Disease education and advocacy services. Hosts education days to increase public awareness. Guest speakers discuss different topics about Huntington's Disease such as discoveries about the disease, new and promising research, discoveries about the progression of the disease, and resource available to families and patients.
Local chapter supports are available online through the chapter website and social media channels. By keeping a constant stream of information online, patients and families can find support and information at all hours of the day or night.
Members providing advocacy services through work with the medical community including medical students, social workers, and police to create an understanding environment for those who are suffering from Huntington's Disease.
Categories
Huntington's Disease
Disease/Disability Information