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Huntington's Disease Society of America (HSDA), with its headquarters in New York City, currently has 54 volunteer-led Chapters and Affiliates across the United States. Chapters and Affiliates support HDSA's mission by bringing community-based services, awareness and grassroots fundraising to strengthen resources to families affected by HD.

Categories

Disease/Disability Information
Huntington's Disease
Health/Disability Related Support Groups
Case/Care Management
Disability Awareness Training
Hosting engaging events and activities for all ages and abilities including teen, young adult, and all-family events with some informational nights mixed in. Follow on Facebook to stay up to date on upcoming events!

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Social Clubs/Events
Health/Disability Related Support Groups
Disease/Disability Information
Offers support groups that provide a place to come together and openly express feelings about Parkinson's Disease. For a list of meetings in South Dakota, visit website.

Categories

Health/Disability Related Support Groups
Disease/Disability Information
Caregiver/Care Receiver Support Groups
Parkinson's Disease
Monument Health Home+ Home Health and Hospice provides educational, supportive 12-week grief support class/group. These groups bring people together who have experienced loss and provided a safe environment to share experiences and learn from one another.

Categories

Bereaved Child Support Groups
Bereavement and Grief Counseling
Bereaved Parent Support Groups
Terminal Illness Support Groups
Educational resources are available for people to learn more about Spondylarthritis. Support Groups (in-person or online) and community forums are open to everyone to meet other people with Spondylitis related diseases. Spondylarthritis includes diseases such as Ankylosing Spondylitis (AS), Reactive Arthritis (ReA), Psoriatic Arthritis (PsA), Juvenile spondylarthritis (JSpA), Enteropathic Arthritis (Spondylitis/Arthritis associated with inflammatory bowel disease), and Undifferentiated Spondylarthritis (USpA).

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Health/Disability Related Support Groups
Individual Advocacy
Pott Disease
Specialized Information and Referral
Trained peer or professionally led groups for caregivers and others dealing with Alzheimer's disease. Many locations offer specialized groups for children, individuals with younger-onset and early-stage Alzheimer's, adult caregivers and others with specific needs.

Categories

Health/Disability Related Support Groups
Alzheimer's Disease
Caregiver Training
Dementia
Caregiver/Care Receiver Support Groups
Comprehensive services include counseling and support groups over the phone, online and in-person, educational workshops, publications and financial and co-payment assistance. All services are provided by oncology social workers and world-leading cancer experts. Offers individual counseling or support groups in three ways: face-to-face, on the telephone, and online. Connect with others in support groups for cancer patients, loved ones and people who have lost a loved one, led by master's-prepared oncology social workers. Online support groups are available, 24 hours a day, 7 days a week.

Categories

Health/Disability Related Support Groups
Individual Counseling
Cancer
Terminal Illness Support Groups
Internet Support Groups
Provides the following services - Advocacy: Teaches people with disabilities the skills needed to advocate for themselves. Independent Living Skills: Provides hands-on training in daily-living skills including cooking, budgeting, organizing, and more. Information and referral: Connects people with resources which can provide needed information to assist individuals to live independently. Peer counseling: Provides opportunities for people with disabilities to engage with others in small or large groups or on an individual basis. Transition: Facilitates the transition of individuals with disabilities from a nursing home to independent living; providing prevention services to individuals who choose to live independently and not in a nursing home or assisted-living setting; and assisting youth to gain skills as they transition into adulthood. Community Living Services: Assists individuals in obtaining accessible, affordable housing, transportation, and other community living services. Home Modifications Adaptive Devices: Provides home modifications and adaptive devices, which could include ramps, lift chairs, bathroom modifications, reachers, canes, walkers and more. Telecommunication Adaptive Devices: Provides adapted telecommunication services, which includes an emergency phone dialer. American's with Disabilities Act: Serves as educators and consultants for contractors, businesses, organizations, and individuals regarding the American with Disabilities Act (ADA) and its guidelines and requirements. Assistive Daily Living Services: Provides services for people ages 18 and older, with physical disabilities affecting all four limbs, who need assistance with daily living activities. Services include program education and support and personal attendant services. ​Money Follows the Person: Provides options for older adults and/or people with disabilities living in nursing homes, hospitals, or long-term care facilities to enable them to successfully return to their homes and communities. Helps individuals identify barriers to living on their own, helps them find a place to live that meets their needs, and helps them find the services and supports they need to continue living independently.

Categories

Accessibility Related Standards/Legislation Compliance
Disease/Disability Information
Specialized Information and Referral
Issue Advocacy
Specialized Telecommunications Equipment
Disabilities Issues
Home/Community Based Developmental Disabilities Programs
Youth/Student Support Groups
Brain Injury Rehabilitation
Individual Advocacy
Transfer Devices
Home Barrier Evaluation/Removal Services
Independent Living Skills Instruction
Intellectual Disabilities
Functional Disabilities
Health/Disability Related Support Groups
Walking Aids
Speakers/Speakers Bureaus
Personal Alarm Systems
Disability Awareness Training
Supported Living Services for Adults With Disabilities
Assistive Technology Expense Assistance
Provides various programs for catastrophically disabled veterans and other people with disabilities. Services include, but are not limited to the following areas: - Service to veterans - Veterans service officer - who is able to assist in obtaining benefits - Advocacy programs for veterans and people with disabilities - Legislation - Peer counseling - for persons with physical disabilities and especially new spinal cord injuries and multiple sclerosis. - Sports and recreational activities - Assists veterans that have physical disabilities with getting involved in sports activities such as bowling, lacrosse, boccia ball, fishing, skiing, trap shooting, and hunting. Also open to individuals with disabilities. - Equipment lending - Technical assistance on the Americans with Disabilities Act (ADA).

Categories

Veterans
Veteran Burial Benefits
Disability Awareness Training
Brain Injury Rehabilitation
Specialized Information and Referral
Veteran Benefits Assistance
Accessibility Related Standards/Legislation Compliance
Veteran Membership Organizations
Peer Counseling
Health/Disability Related Support Groups
Veteran Education Benefits
Daily Living Aids
Disability Related Sports
Veteran Survivors Benefits
Disease/Disability Information
Spinal Cord Injuries
All support groups are virtual, held via Zoom. Visit Crohn's & Colitis Foundation website for more details.

Categories

Crohn's Disease
Disease/Disability Information
Internet Support Groups
Health/Disability Related Support Groups
Provides support, information, and referrals for people living with epilepsy, including possible resources to help with medication costs, support groups, find-an-epilepsy-specialist, help finding a seizure safety or detection device and information about services and programs serving the epilepsy community.

Categories

Chronic Disease Self Management Programs
Medical Information Services
General Legal Aid
Epilepsy
Issue Advocacy
Learning Management System Selection/Support
General First Aid Instruction
Volunteer Recruitment/Coordination Volunteer Opportunities
Lawyer Referral Services
General Bereavement and Grief Support Groups
Disease/Disability Information
Health/Disability Related Support Groups
Subject Specific Public Awareness/Education
Specialized Information and Referral
A social group for families who have a child with a disability or rare disease to meet in a setting where kids can play with their peers and parents to connect with each other. Families can also connect in a private online community to ask questions, get answers and recommendations, as well as a safe space to share their experiences. Siblings are welcome to attend and a parent/guardian is required.

Categories

Children's Play Groups
Health/Disability Related Support Groups
Disease/Disability Information
Provides the following services - Advocacy: Teaches people with disabilities the skills needed to advocate for themselves. Independent Living Skills: Provides hands-on training in daily-living skills including cooking, budgeting, organizing, and more. Information and referral: Connects people with resources which can provide needed information to assist individuals to live independently. Peer counseling: Provides opportunities for people with disabilities to engage with others in small or large groups or on an individual basis. Transition: Facilitates the transition of individuals with disabilities from a nursing home to independent living; providing prevention services to individuals who choose to live independently and not in a nursing home or assisted-living setting; and assisting youth to gain skills as they transition into adulthood. Community Living Services: Assists individuals in obtaining accessible, affordable housing, transportation, and other community living services. Home Modifications Adaptive Devices: Provides home modifications and adaptive devices, which could include ramps, lift chairs, bathroom modifications, reachers, canes, walkers and more. Telecommunication Adaptive Devices: Provides adapted telecommunication services, which includes an emergency phone dialer. American's with Disabilities Act: Serves as educators and consultants for contractors, businesses, organizations, and individuals regarding the American with Disabilities Act (ADA) and its guidelines and requirements. Assistive Daily Living Services: Provides services for people ages 18 and older, with physical disabilities affecting all four limbs, who need assistance with daily living activities. Services include program education and support and personal attendant services. ​Money Follows the Person: Provides options for older adults and/or people with disabilities living in nursing homes, hospitals, or long-term care facilities to enable them to successfully return to their homes and communities. Helps individuals identify barriers to living on their own, helps them find a place to live that meets their needs, and helps them find the services and supports they need to continue living independently.

Categories

Accessibility Related Standards/Legislation Compliance
Disease/Disability Information
Specialized Information and Referral
Issue Advocacy
Specialized Telecommunications Equipment
Disabilities Issues
Home/Community Based Developmental Disabilities Programs
Youth/Student Support Groups
Brain Injury Rehabilitation
Individual Advocacy
Transfer Devices
Home Barrier Evaluation/Removal Services
Independent Living Skills Instruction
Intellectual Disabilities
Functional Disabilities
Health/Disability Related Support Groups
Walking Aids
Speakers/Speakers Bureaus
Personal Alarm Systems
Disability Awareness Training
Supported Living Services for Adults With Disabilities
Assistive Technology Expense Assistance
Providing quality Dementia education, resources, support, and training for people living with dementia, care partners, and businesses and organizations.

Categories

Caregiver/Care Receiver Support Groups
Families/Friends of People With Alzheimer's Disease and Other Dementias
Homemaker Assistance
Health/Disability Related Support Groups
Hospice provides care to those in the advanced stages of an incurable illness and their family, including medical, emotional, and spiritual support. Hospice services can take place in the home, supervised living facility, or nursing home. Also provides open and ongoing bereavement groups to anyone in the community at no charge.
Monument Home+ Home Health and Hospice offers individual, couples, and family grief counseling to the immediate family members of the patients who were on Monument Health hospice services. Since people grieve differently, counseling is offered to meet the distinctive needs of different age groups and types of loss with counselors and professional social workers with specialized training and experience in grief and loss.

Categories

Terminal Illness Support Groups
Bereaved Child Support Groups
Bereaved Parent Support Groups
Bereavement and Grief Counseling
An all volunteer organization which enables all families and other associated with an autistic, Aspergers' or Pervasive Development Disorder to have access to support groups, meetings, and additional information and resources. Affiliate of the Autism Society of America. Services include Support group meetings, Summer sports camp, Referral services, Email support, and Life skills support.

Categories

General Mental Health Support Groups
Therapeutic Camps
Summer Camps
Disease/Disability Information
Special Interest Camps
Autism Spectrum Disorder
Disability Awareness Training
Parenting Skills Classes
Health/Disability Related Support Groups
Parents of People With Disabilities
Parent Support Groups
A statewide community resource that offers chronic disease self-management education workshops to help adults living with ongoing physical and/or mental health conditions. The workshops also help caregivers understand how healthier choices can improve quality of life, boost self-confidence, and inspire positive lifestyle changes. These workshops teach skills and tools to use that can help you manage symptoms, improve the quality of day-to-day living, and reduce healthcare costs. Workshops are offered in 6 weekly sessions and are free to attend.

Categories

Workshops/Symposiums
Health/Disability Related Support Groups
Provides the following services - Advocacy: Teaches people with disabilities the skills needed to advocate for themselves. Independent Living Skills: Provides hands-on training in daily-living skills including cooking, budgeting, organizing, and more. Information and referral: Connects people with resources which can provide needed information to assist individuals to live independently. Peer counseling: Provides opportunities for people with disabilities to engage with others in small or large groups or on an individual basis. Transition: Facilitates the transition of individuals with disabilities from a nursing home to independent living; providing prevention services to individuals who choose to live independently and not in a nursing home or assisted-living setting; and assisting youth to gain skills as they transition into adulthood. Community Living Services: Assists individuals in obtaining accessible, affordable housing, transportation, and other community living services. Home Modifications Adaptive Devices: Provides home modifications and adaptive devices, which could include ramps, lift chairs, bathroom modifications, reachers, canes, walkers and more. Telecommunication Adaptive Devices: Provides adapted telecommunication services, which includes an emergency phone dialer. American's with Disabilities Act: Serves as educators and consultants for contractors, businesses, organizations, and individuals regarding the American with Disabilities Act (ADA) and its guidelines and requirements. Assistive Daily Living Services: Provides services for people ages 18 and older, with physical disabilities affecting all four limbs, who need assistance with daily living activities. Services include program education and support and personal attendant services. ​Money Follows the Person: Provides options for older adults and/or people with disabilities living in nursing homes, hospitals, or long-term care facilities to enable them to successfully return to their homes and communities. Helps individuals identify barriers to living on their own, helps them find a place to live that meets their needs, and helps them find the services and supports they need to continue living independently.

Categories

Accessibility Related Standards/Legislation Compliance
Disease/Disability Information
Specialized Information and Referral
Issue Advocacy
Specialized Telecommunications Equipment
Disabilities Issues
Home/Community Based Developmental Disabilities Programs
Youth/Student Support Groups
Brain Injury Rehabilitation
Individual Advocacy
Transfer Devices
Home Barrier Evaluation/Removal Services
Independent Living Skills Instruction
Intellectual Disabilities
Functional Disabilities
Health/Disability Related Support Groups
Walking Aids
Speakers/Speakers Bureaus
Personal Alarm Systems
Disability Awareness Training
Supported Living Services for Adults With Disabilities
Assistive Technology Expense Assistance
Personalized Support: Speak one-on one with a highly trained oncology nurse or social worker who can assist you through blood cancer treatment, financial and social challenges, and give accurate up-to-date disease treatment and support information. First Connection: For those who have recently diagnosed with cancer, the Leukemia and Lymphoma Society has provided the opportunity to speak with someone who's been through treatment and learned how to manage the same disease. The Patti Robinson Kaufmann First Connection Program is a peer-to-peer program that matches newly diagnosed patients and their families with trained volunteers who have been touched firsthand by a blood cancer and shared similar experiences. Online Chats: Live, weekly online chats provide a friendly forum to share experiences and chat with others about anything from the initial phase of diagnosis to treatment and survivorship. Each chat is moderated by an oncology social worker and is password-protected. The online chats are not a replacement for psychotherapy or support groups. Patient Financial Assistance Programs (visit website for more information): Programs may cover copays, other medical expenses, urgent need for non-medical expenses, treatment-related travel expenses, clinical trial related-travel expenses and general financial support. Please visit the website for an up-to-date listing of available programs, eligibility criteria, and funding amounts.

Categories

Internet Support Groups
Prescription Expense Assistance
Peer Counseling
Cancer
Non-Emergency Medical Transportation
Medical Care Expense Assistance
Health/Disability Related Support Groups
Caregiver/Care Receiver Support Groups
Disease/Disability Information
Provides information about Down Syndrome, direction to resources, and networking opportunities. For a schedule of meetings and family fun events, visit www.newdirectionsdsa.com

Categories

Health/Disability Related Support Groups
Parent Support Groups
Disability Awareness Training
Parents of People With Disabilities
Disease/Disability Information
Down Syndrome
Provides a social opportunity for caregivers and their loved ones with memory loss to come together to enjoy camaraderie with others in a similar situation, without the common pressures of everyday life with dementia. Includes an interactive program, refreshments, occasional entertainment and resources.

Categories

Caregiver/Care Receiver Support Groups
Dementia
Dementia Management
Health/Disability Related Support Groups
Provides the following services - Advocacy: Teaches people with disabilities the skills needed to advocate for themselves. Independent Living Skills: Provides hands-on training in daily-living skills including cooking, budgeting, organizing, and more. Information and referral: Connects people with resources which can provide needed information to assist individuals to live independently. Peer counseling: Provides opportunities for people with disabilities to engage with others in small or large groups or on an individual basis. Transition: Facilitates the transition of individuals with disabilities from a nursing home to independent living; providing prevention services to individuals who choose to live independently and not in a nursing home or assisted-living setting; and assisting youth to gain skills as they transition into adulthood. Community Living Services: Assists individuals in obtaining accessible, affordable housing, transportation, and other community living services. Home Modifications Adaptive Devices: Provides home modifications and adaptive devices, which could include ramps, lift chairs, bathroom modifications, reachers, canes, walkers and more. Telecommunication Adaptive Devices: Provides adapted telecommunication services, which includes an emergency phone dialer. American's with Disabilities Act: Serves as educators and consultants for contractors, businesses, organizations, and individuals regarding the American with Disabilities Act (ADA) and its guidelines and requirements. Assistive Daily Living Services: Provides services for people ages 18 and older, with physical disabilities affecting all four limbs, who need assistance with daily living activities. Services include program education and support and personal attendant services. ​Money Follows the Person: Provides options for older adults and/or people with disabilities living in nursing homes, hospitals, or long-term care facilities to enable them to successfully return to their homes and communities. Helps individuals identify barriers to living on their own, helps them find a place to live that meets their needs, and helps them find the services and supports they need to continue living independently.

Categories

Accessibility Related Standards/Legislation Compliance
Disease/Disability Information
Specialized Information and Referral
Issue Advocacy
Specialized Telecommunications Equipment
Disabilities Issues
Home/Community Based Developmental Disabilities Programs
Youth/Student Support Groups
Brain Injury Rehabilitation
Individual Advocacy
Transfer Devices
Home Barrier Evaluation/Removal Services
Independent Living Skills Instruction
Intellectual Disabilities
Functional Disabilities
Health/Disability Related Support Groups
Walking Aids
Speakers/Speakers Bureaus
Personal Alarm Systems
Disability Awareness Training
Supported Living Services for Adults With Disabilities
Assistive Technology Expense Assistance
Group sessions are available at different times throughout the year. Some of the group sessions offered include: - Corrective Thinking: For youth ages 13 - 18 to help members identify: The five basic thinking errors and deterrents to thinking errors The four characteristics that are essential for change The impact of behaviors on family, friends, and the community - Couples Workshops: For couples who wish to enhance their relationship, whether or not they are having difficulties. Workshops offer: Skill and idea description and demonstration Opportunity for couples to practice skills privately Participants have the opportunity to ask questions and discuss their experiences if they would like - Introduction to Mindfulness: What happens in your life depends on your mind - Social Skills Group: For 10-15 year olds struggling with social skills or fitting in. Understanding Fetal Alcohol Spectrum Disorder: For children ages 5 - 11 and their birth, foster, or adoptive parents. While the parents or parenting team is involved in education, supportive discussion and training, the children will gather in a separate group to work on developmental and behavioral issues. - Mental Health First Aid Trainings: Offered periodically. Participants are taught to assess for risk of suicide or harm; listen non-judgmentally; give reassurance and information; encourage appropriate professional help; and encourage self-help and other support strategies. - Youth Mental Health First Aid Trainings: Offered periodically. Participants are taught to assess for risk of suicide or harm; listen non-judgmentally; give reassurance and information; encourage appropriate professional help; and encourage self-help and other support strategies. All within the context of helping the youth population.

Categories

Workshops/Symposiums
Disability Awareness Training
Marriage and Relationships Counseling
Mental Health Expense Assistance
Conjoint Counseling
Youth/Student Support Groups
Disease/Disability Information
Health/Disability Related Support Groups
Suicide Prevention Programs
Parent Support Groups
Group Counseling
General Mental Health Support Groups
Relationship Workshops
Fetal Alcohol Spectrum Disorders
Monument Health Home+ Home Health and Hospice provides educational, supportive grief support groups. These groups bring people together who have experienced loss and provide a safe environment to share experiences and learn from one another.

Categories

Bereaved Child Support Groups
Bereavement and Grief Counseling
Terminal Illness Support Groups
Bereaved Parent Support Groups